In order to demonstrate how the ideologies of "Risk & Resiliency" and "Positive Youth Development" come into play for Child Life Therapy, I created a chart of different techniques and methods used by a Child Life Specialist and which ideology it fits into.
|
Technique/method/skills |
Ideology? |
Why? |
Who is the Focus? |
|
Coping with illnesses - Explaining the illness, procedures, and
addressing future concerns for the patient - Using medical play therapy to explain what
is happening to patient and the procedures - Use of dolls - Use of medical
equipment |
Both |
From my experience
learning to cope with a serious long term illness
takes long term methods and therapy. For the child they may need to
just talk about what their illness means and learning about their condition
through medical play therapy. While the parents may need to also talk
about the diagnosis, they may also need resources and information from the
medical staff at the hospitals. Thus, like positive youth development,
coping with an illness is a creating a positive path for a patient's
future. Positive Youth Development puts the patient first in order to
help them and their families cope with the diagnosis. |
Both Child and Illness focused: They are focused on the illness as they explain and help the child and families understand what is going on. However they are also child focused as they are explaining the illness in a way that children can understand. |
|
Pain & Anxiety
Management - Drawing how they are
feeling - Using picture scales - Using distractions
– ipads - Talking to child and
families about what is happening to them |
Risk & Resiliency |
When a patient is in
pain or has anxiety about the hospital or a procedure, this need to be dealt
with immediately. What can child life specialists do to aide the
situation in the moment - that is the important question. |
Illness Focused – The main focus of pain management is for the doctors and nurses to understand how much pain the child is in because of their diagnosis. However I feel like anxiety management is more child focused because it is working on how the child is feeling mentally and emotionally not just physically. Anxiety is a long-term management thus each child is different and the implementation is tailored to each child individually. |
|
Identity Development - Talking to child and
families about their future living with the illness or diagnosis - Providing resources - Helping to provide
the tools and equipment within the home setting - Helping to educate friends
and community on the child’s illness or diagnosis - Providing resources
to help aid in child’s identity as they grow up with their diagnosis |
Positive Youth
Development |
Positive Youth
Development would state that a patient comes first. As an example,
rather than saying a cancer patient, which focuses on the cancer instead
they would say a patient with cancer which now focuses on the patient.
A child life specialist knows, understands, and implements a healthy identity
for patients and families as they navigate through an illness and diagnosis. |
Child Focused. Identity Development is completely focused on the child and how they are growing and adjusting in their life with this illness and diagnosis. |
|
Support - |
Both |
Positive Youth Development
fits perfectly with supporting the child and families within the hospital
setting. It is a main job of a child life specialist to be positive and
upbeat especially while working in hospitals. Yes it is difficult for
the children and families within the hospital but Positive Youth Development
would attempt to make the best of those difficult situations. |
Child & Family Focused. Support is a huge job for Child Life Specialists. Sometimes support is what Shayla describes as just being there for the family and silbling – a simple hug during a tough time. Or support can be talking to the patient and letting them know you are there for them. |


I like this chart, and it helps break down some of the child life skills you have been studying. I wonder if you might expand this chart a little more given that you have interview data and given the different dimensions of these ideologies?
ReplyDeleteI think there is room for another column that says, "child centered or illness centered." A specialist that begins a conversation about an illness, an object or context is speaking within a different ideology from a specialist that begins a conversation about how a child/parent/family member is feeling or thinking or even what they think about an object, context, etc. Right?
There might be another column in your chart that says "examples," and you can put a snippet from one of your interviews that shows what this kind of thing (e.g. talking with a child about a tool or object) looks like.
ReplyDeleteI am still looking for an example to help me understand this. Maybe this is a different blog post. Do you have examples of how participants talked about one of the categories you mention above? (coping with illness, pain management, or identity development?). It would be helpful for me to see some direct quotes, with you explaining how the speaker is tacking back and forth between illness and the child. I'm wondering if all of your participants talked in the same way (did they all start with illness first, and then the child, for instance?). I think choosing one category to focus on here, with some examples and analysis, is important for you to do.
ReplyDelete